It's important to remember that leaks, bodies, and circumstances can be very different and each case should be managed as best as possible for that specific situation. For instance, most POTS recommendations push salt, water, and compression, but some leakers with POTS symptoms secondary to a spinal CSF leak and underlying intracranial hypertension may feel worse with too much salt, water, or compression. Not knowing what's happening inside your body can be confusing and frustrating, but the overall goal is not to create further harm or misery.
Please bear in mind that while symptoms may seem improved by certain medications, they may only mask symptoms of an issue that is still present. Certain exercises or activities may worsen leaks and leakers should be aware of the risk of worsening their overall condition.
Wait times for testing and treatment can be long and torturous. Below are some tips that may help ease symptoms until treatment is available.
May raise pressure:
May lower pressure:
High intracranial pressure can cause a plethora of symptoms, including confusing or vague neurological issues, pain, and fatigue. It's important to remember that treatments may differ, as do underlying causes. Medication or surgery may be an option in many cases but lifestyle choices can affect pressure in a variety of ways.
Note that some medications for IH may lower potassium, in which case bananas, coconut water, or other sources of added potassium may help ease side effects. Bloodwork may also be monitored for acidosis when on pressure lowering medications.
Below are some tips that may help manage IIH and RHP.
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