Intracranial Pressure Information and Resources

Intracranial Pressure Information and ResourcesIntracranial Pressure Information and ResourcesIntracranial Pressure Information and Resources
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  • More
    • Home
    • Spinal CSF Leaks
    • Intracranial Hypertension
    • Compression Issues
    • Research
    • Resources
    • Tips for Managing
    • ME/CFS and FM
    • Melissa's Story
    • FAQ

Intracranial Pressure Information and Resources

Intracranial Pressure Information and ResourcesIntracranial Pressure Information and ResourcesIntracranial Pressure Information and Resources
  • Home
  • Spinal CSF Leaks
  • Intracranial Hypertension
  • Compression Issues
  • Research
  • Resources
  • Tips for Managing
  • ME/CFS and FM
  • Melissa's Story
  • FAQ

Resources

This site is for informational purposes only. It is not intended as medical advice.

Check the Research page for data.

Brie's Story

Cartoon illustrating spinal CSF leaks with diagram, symptoms, and treatment

Shared with permission from the artist, Brie Schmida (swipe for more)

Videos

The Mystery Headache: CSF Leak - A Fixable Cause of Daily Headache - 2023 Update

Feb 16, 2023  STANFORD HEALTH LIBRARY

Many people who suffer with chronic migraine live with symptoms that are mysterious, unexplained, and undiagnosed — headache, nausea, neck stiffness, ringing in the ear — and all of these symptoms worsen as the day goes on and the individual spends more time in the upright position. However, symptoms improve as long as they are lying down. Such patients may be diagnosed with POTS, Chiari, chronic migraine, new daily persistent headache (NDPH), or even concussion. Ian Carroll, MD, discusses an often-overlooked diagnosis that can be effectively treated — spontaneous intracranial hypotension (CSF leak).

Spinal CSF Leak Foundation

Anna explains spinal cerebrospinal fluid (CSF) leak and that an upright headache (headache worse when upright or worse as the day progresses but improved when lying down) could be a spinal CSF leak.  Learn more at www.spinalcsfleak.org

An Introduction to Cerebrospinal Fluid (CSF) Leaks

Feb 26, 2018 If you've never heard of a cerebrospinal fluid (CSF) leak before, this short animated introduction will get you started.

For more information about CSF leaks, please visit: www.csfleak.info/findoutmore

Cerebral spinal fluid (CSF) leaks at Mayo Clinic

Feb 17, 2022 Mayo Clinic neurologists, Jeremy Cutsforth-Gregory, MD, the different types of cerebral spinal fluid (CSF) leaks and the treatment options at Mayo Clinic.  All patients see a collaborative care team and an individualized treatment plan is developed utilized high quality imaging and advanced technology. 

Dr. Wouter Schievink—Current surgical treatment of spinal CSF leaks (by leak type)

 Intracranial Hypotension Symposium 2021 Dr. Wouter Schievink, Professor of Neurosurgery at Cedars-Sinai in Los Angeles, CA, presented this talk on “Current surgical treatment of spinal CSF leaks (by leak type)” at the 4th Cedars-Sinai Intracranial Hypotension Symposium. The symposium was hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation in Los Angeles, CA, October 2, 2021.

Sensible Physical Restrictions after Epidural Patching or Surgery

Laura Freed, MPT, physical therapist and owner of Apex Physical Therapy in Parkersburg, WV, presented this talk in the Patient Track of the Intracranial Hypotension Symposium on Oct 14, 2017 in Santa Monica, CA. #SIH2017 symposium was hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation.

Epidural Blood Patch Basics: What They Are and Why They Fail, by Dr. Ian Carroll

A talk by Dr. Ian Carroll on epidural blood patch basics at the Bridging the Gap Conference on November 11, 2023, presented by the Spinal CSF Leak Foundation in partnership with the University of Colorado Anschutz Medical Campus. 

Dr. Ian Carroll—Outcomes of EBP in patients who fail to meet ICHD3 diagnostic criteria

 Dr. Ian Carroll, Associate Professor of Anesthesiology, Perioperative, and Pain Medicine, and Chief of the Stanford CSF Leak Headache Program at Stanford University School of Medicine in Stanford, CA, presented this talk on “Outcomes of EBP in patients who fail to meet ICHD3 diagnostic criteria” at the 4th Cedars-Sinai Intracranial Hypotension Symposium. The symposium was hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation in Los Angeles, CA, on October 2, 2021. 

Webinar on venous congestion, brain and neck disorders

Jun 10, 2023

Doctor Ferdinand Hui presentation-01:22

Michael Goeke recovery story- 06:22

Panel Discussion- Symptoms- 14:48

Panel Discussion- Diagnostics- 35:25 

Panel Discussion- Intervention and Treatment- 1:00:51

Nexus MD Presentation- 1:36:34

Dr. Ian Carroll—Iatrogenic Leaks: PDPH, needle type data; can we reduce the incidence

 Dr. Ian Carroll, associate professor of anesthesiology, perioperative and pain medicine, and chief of the Stanford Headache Program, presented this talk on iatrogenic leaks at the 2023 Cedars-Sinai Intracranial Hypotension Conference on July 8, 2023 

Dr. Wouter Schievink—Types of Spontaneous Leaks: Anatomy and Pathogenesis

 Wouter Schievink, Professor of Neurosurgery at Cedars-Sinai in Los Angeles, CA, presented this talk on “Types of Spontaneous Leaks: Anatomy and Pathogenesis” at the 2023 Cedars-Sinai Intracranial Hypotension Conference on July 8, 2023.  

Dr. Deborah Friedman—Clinical mimics: Post-Traumatic Headache, NDPH, and Occipital Neuralgia

 Dr. Deborah Friedman, Neuro-Ophthalmologist and Headache Medicine Specialist, presented this talk on “Clinical mimics: Post-Traumatic Headache, NDPH, and Occipital Neuralgia” at the 2023 Cedars-Sinai Intracranial Hypotension Conference on July 8, 2023. 

SPINAL LEAKS: THREE TYPES Algorithmic Multimodality Approach to Diagnosis and Treatment of Spinal CSF Leak

Apr 13, 2022 Full article: https://www.ajronline.org/doi/10.2214...

Andrew L. Callen, MD discusses his AJR review describing imaging techniques including dynamic fluoroscopic and CT myelography as well as delayed MR myelography, and treatment options including percutaneous, endovascular, and surgical approaches, for spontaneous intracranial hypotension.

About Spinal CSF Leaks

An illustrated Spinal CSF Leak explainer from Brie Schmida

Graphics

Common Acronyms related to intracranial pressure issues, spinal CSF leaks, and related conditions.

Common Acronyms related to intracranial pressure issues and spinal CSF leaks. Free to save and share via Downloads section below.

Factors that may raise or lower intracranial pressure in IH/IIH/intracranial hypertension, CSF leaks

Watch for personal triggers such as food, weather, elevation, or certain positions. Graphic free to save and share via Downloads section below.

how do CSF leaks start, what causes CSF leaks, factors driving intracranial hypertension pressure

Graphic by AD Loftis, Creative Commons license

Downloads

Acronym Graphic (jpg)Download
Pressure Factors Graphic (jpg)Download
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