Intracranial Pressure Information and Resources

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  • Spinal CSF Leaks
  • Intracranial Hypertension
  • Compression Issues
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  • Resources
  • Tips for Managing
  • ME/CFS and FM
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  • FAQ
  • More
    • Home
    • Spinal CSF Leaks
    • Intracranial Hypertension
    • Compression Issues
    • Research
    • Resources
    • Tips for Managing
    • ME/CFS and FM
    • Melissa's Story
    • FAQ

Intracranial Pressure Information and Resources

Intracranial Pressure Information and ResourcesIntracranial Pressure Information and ResourcesIntracranial Pressure Information and Resources
  • Home
  • Spinal CSF Leaks
  • Intracranial Hypertension
  • Compression Issues
  • Research
  • Resources
  • Tips for Managing
  • ME/CFS and FM
  • Melissa's Story
  • FAQ

This site is for informational purposes only. It is not intended as medical advice.

← Slide for Diagrams→

Research and Data Links

Brain Basics

Easy to digest information for those who may have cognitive issues.

Neuroscientifically Challenged 2-Minute videos--the basics of neuroscience.

https://youtu.be/gLwtJcKh4gQ

Cerebrospinal fluid flow

https://www.kenhub.com/en/library/anatomy/circulation-of-the-cerebrospinal-fluid

Anatomy of the Brain

https://www.aans.org/en/Patients/Neurosurgical-Conditions-and-Treatments/Anatomy-of-the-Brain


Spinal CSF Leaks

Multidisciplinary consensus guideline for diagnosis and management of SIH

https://jnnp.bmj.com/content/early/2023/05/04/jnnp-2023-331166

Spinal CSF Leak Foundation

https://spinalcsfleak.org/

CSF Leak Association

https://csfleak.uk/

Diagnosis and Treatment of SIH Role of Epidural Blood Patching

https://www.neurology.org/doi/10.1212/CPJ.0000000000200290

Dr. Ian Carroll Stanford Leaks and POTS Research and 48-hour flat test

https://drive.google.com/drive/u/0/folders/1uE8MXke3zmQXLudirQVdzC6ElFCX2OOJ

Dr. Schievink explains the dura mater & more

https://spinalcsfleak.org/dr-schievink-explains-dura-mater/

Cedars Sinai

https://www.cedars-sinai.org/health-library/diseases-and-conditions/c/cerebrospinal-fluid-leak.html

Laura Freed, MPT - Sensible Physical Restrictions after Epidural Patching

https://www.youtube.com/watch?v=NsSdUccRY0k

Finding the Leak: Tips for CSF Leak & Venous Fistula Localization A Callen

https://arrsinpractice.org/finding-the-leak-tips-for-csf-leak-and-venous-fistula-localization/

Epidural Patching Outcomes in Patients with Suspected CSF Leak

https://www.neurology.org/doi/10.1212/WNL.0000000000209449


Intracranial Hypertension

NORD

https://rarediseases.org/rare-diseases/idiopathic-intracranial-hypertension/

NHS

https://www.nhs.uk/conditions/intracranial-hypertension/

NEI

https://www.nei.nih.gov/learn-about-eye-health/eye-conditions-and-diseases/idiopathic-intracranial-hypertension

Cedars Sinai

https://www.cedars-sinai.org/health-library/diseases-and-conditions/i/pseudotumor-cerebri.html

Intracranial Hypertension Research Foundation

https://ihrfoundation.org/

Intracranial Hypertension

https://www.ncbi.nlm.nih.gov/books/NBK507811/


Publications

Consensus Practice Guidelines on Postdural Puncture Headache

https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2808365

Headaches Due to Low and High Intracranial Pressure

http://www.headache.mobi/uploads/1/1/7/5/11757140/headaches_due_to_low_and_high_intracranial.9.pdf

The link between idiopathic intracranial hypertension, fibromyalgia, and ch

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6292399/

Transformative insight into spinal CSF leaks in persist. headache syndromes

https://headachejournal.onlinelibrary.wiley.com/doi/full/10.1111/head.14677

A paradigm for chronic fatigue syndrome: caught between IH and SIH

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7613918/

The Link Between Empty Sella Syndrome, Fibromyalgia, and Chronic Fatigue Sy

https://www.dovepress.com/the-link-between-empty-sella-syndrome-fibromyalgia-and-chronic-fatigue-peer-reviewed-fulltext-article-JPR

High Prevalence of Perineural Cysts in Patients with Fibromyalgia and Chron

 https://academic.oup.com/painmedicine/article/22/4/883/6015822?login=false 

Life changing response to successive surgical interventions on cranial veno

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10097901/

Signs of Intracranial Hypertension, Hypermobility, and Craniocervical Obstr

https://www.frontiersin.org/articles/10.3389/fneur.2020.00828/full

Spinal CSF leak symptoms can be indistinguishable from behavioral variant f

https://alz-journals.onlinelibrary.wiley.com/doi/full/10.1002/trc2.12367

SIH requires high index of suspicion due to potenially normal test results

https://practicalneurology.com/articles/2020-may/spontaneous-intracranial-hypotension-1

ICP waveform changes in Alzheimer’s disease and mild cognitive impairment

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8168790/

NPH often misdiagnosed as Alzheimer’s or Parkinson’s

https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia/normal-pressure-hydrocephalus

Intracranial Hypotension With Parkinsonism, Ataxia, and Bulbar Weakness

https://jamanetwork.com/journals/jamaneurology/fullarticle/775178

Connective tissue abnormalities associated with cerebrospinal fluid leaks

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3598315/

Alzheimer’s disease is a result of loss of full brain buoyancy

https://www.sciencedirect.com/science/article/pii/S0306987722000974

Overview CSF System and Its Implications for Brain and Spinal Cord Diseases

https://www.frontiersin.org/articles/10.3389/fnhum.2021.737217/full

“Idiopathic” IH: An update from neurointerventional research for clinicians

https://journals.sagepub.com/doi/10.1177/03331024231161323

Understanding jugular venous outflow disturbance

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6489808

Methods to measure, model and manipulate fluid flow in brain

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7607555/

Fluid Dynamics Inside the Brain Barrier: Current Concept of Interstitial Fl

https://pubmed.ncbi.nlm.nih.gov/29799313/

The co-existence of cerebral venous outflow and connective tissue disorders

https://pubmed.ncbi.nlm.nih.gov/38269002/

Factors Predictive of Treatment Success in CT-Guided Fibrin Occ CSF-VF

https://www.ajnr.org/content/early/2023/10/05/ajnr.A8005

Distinct Pattern of Membrane Formation With Spinal CFS Leaks in SIH

https://journals.lww.com/onsonline/fulltext/9900/distinct_pattern_of_membrane_formation_with_spinal.885.aspx

Nasopharyngeal lymphatic plexus is a hub for cerebrospinal fluid drainage

https://www.nature.com/articles/s41586-023-06899-4

ICP increases during movement between body positions

https://www.sciencedirect.com/science/article/pii/S2772529424000274

Fluctuating hearing loss secondary to spontaneous intracranial hypotension

https://www.researchgate.net/publication/378378406

Borderline IH Manifesting as CFS Treated by Venous Sinus Stenting

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4648738/

Venous stenting for idiopathic intracranial hypertension

https://pubmed.ncbi.nlm.nih.gov/34551993/

SIH ... Treated by Surgical Relief of Cranial Venous Outflow Obstruct

https://pubmed.ncbi.nlm.nih.gov/33403194/

Diffusion-Weighted Imaging Reveals Impaired Glymphatic Clearance in IIH

https://www.ajnr.org/content/early/2024/01/18/ajnr.A8088

IIH in patients with cerebral small vessel disease

https://pubmed.ncbi.nlm.nih.gov/36607854/

Dynamic Internal Jugular Vein Compression by Hypertrophic Hyoid Bone

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7186089/

Cervical spondylotic internal jugular venous compression syndrome

https://onlinelibrary.wiley.com/doi/full/10.1111/cns.13148

Cerebral venous sinus thrombosis due to external compression of IJV

https://journals.sagepub.com/doi/full/10.1177/03000605211006609

A proposed framework for cerebral venous congestion

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8826290/

Pathogenesis and Management in Cerebrovenous Outflow Disorders

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7801276/

Intracranial Venous Sinus Stenting Improves Headaches & Cognitive Dysf EDS

https://biomedres.us/pdfs/BJSTR.MS.ID.004374.pdf

Connection Between Capsular Ligament Laxity and Cervical Instability

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4200875/

Nutcracker Physiology with Spinal Epidural Venous Congestion

https://karger.com/crn/article/16/1/71/895417/A-Possible-Newly-Defined-and-Treatable-Secondary

Stylo-Jugular Venous Compression Syndrome

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8404167/

IJV venography: 89 patients w suspected cerebral venous outflow disorders

https://www.researchgate.net/publication/380839010

Complex Path to IH and CSF Leak in Hypermobility and Dysautonomia

https://www.researchgate.net/publication/379021765

Spinal Osteoarthritis and CSF Venous Fistulas in Patients with SIH

https://www.ajnr.org/content/early/2024/05/02/ajnr.A8247

Bridging the Gap Conference: Convergence of Clinical and Patient Expertise

https://www.ajnr.org/content/early/2024/05/02/ajnr.A8181

New clinical phenotype: co-existence of cerebral venous outflow and CTDs

https://pubmed.ncbi.nlm.nih.gov/38269002/

The Monro-Kellie Doctrine: A Review and Call for Revision

https://www.ajnr.org/content/44/1/2

Relationship between cognitive function & regulation of cerebral blood flow

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10717011/

Pediatric post-dural puncture headache and paraplegia

https://headachejournal.onlinelibrary.wiley.com/doi/abs/10.1111/head.14749

Lateral Spinal CSF Leaks in Patients with SIH: Radiologic-Anatomic Variants

https://pubmed.ncbi.nlm.nih.gov/38871369/

Stylojugular syndrome - A/Prof Michael Elliott

https://vimeo.com/962723904/8cabc0394b

CPAP increases CSF flow and glymphatic transport

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10371231/

Vascular Alterations Following COVID-19 Infection: A Comprehensive Review

https://www.mdpi.com/2075-1729/14/5/545

Idiopathic intracranial hypertension pathogenesis: The jugular hypothesis

https://pubmed.ncbi.nlm.nih.gov/39113487/

MRI findings as markers of idiopathic intracranial hypertension

https://europepmc.org/article/med/33230036

Jugular venous narrowing and spontaneous spinal CSF leaks

https://journals.sagepub.com/doi/10.1177/15910199241287417

Jugular venous narrowing and spontaneous spinal CSF leaks

https://journals.sagepub.com/doi/10.1177/15910199241287417

SIH Secondary to C4-C5 and T12 Dural Tears Following Yoga

https://www.cureus.com/articles/280434-a-rare-case-of-spontaneous-intracranial-hypotension-secondary-to-c4-c5-and-t12-dural-tears-following-a-yoga-class#!/

Cranial venous outflow insufficiency; rendered almost invisible to rad imag

https://www.sciencedirect.com/science/article/pii/S0967586824004211

Brain sagging dementia (BSD)

https://pmc.ncbi.nlm.nih.gov/articles/PMC10590313

Comorbidities & neurosurgical interventions in a cohort with CTDs

https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1484504


Articles

Post-acute sequelae of COVID infection & cerebral venous outflow disorders

https://pmc.ncbi.nlm.nih.gov/articles/PMC11571337/

Idiopathic Intracranial Hypertension in ME/CFS and Complex Diseases

https://www.healthrising.org/blog/2024/02/03/idiopathic-intracranial-hypertension-chronic-fatigue-unraveled/

Does Intracranial Hypertension Run Rampant in Fibromyalgia, ME/CFS and Migr

https://www.healthrising.org/blog/2019/12/23/intracranial-hypertension-fibromyalgia-chronic-fatigue-migraine/

Pressure Building? Study Suggests Cerebral Spinal Fluid Pressure May Be Cau

https://www.healthrising.org/blog/2014/06/04/pressure-building-cerebral-spinal-fluid-chronic-fatigue-syndrome/ 

Pressure Mounting: Is Fibromyalgia Caused By High Pressure in the Brain (In

https://www.healthrising.org/blog/2018/02/24/pressure-mounting-fibromyalgia-caused-high-pressure-brain-intracranial-hypertension/

Through the Looking Glass: Cerebral Spinal Fluid Leaks & Ehlers Danlos Synd

https://www.healthrising.org/blog/2017/12/01/looking-glass-cerebral-spinal-fluid-leaks-ehlers-danlos-syndrome-alternate-reality-mecfs/

Ruhoy and Kaufman Take on Connective Tissues in ME/CFS, Fibromyalgia and LC

https://www.healthrising.org/blog/2024/04/22/connective-tissue-chronic-fatigue-long-covid-fibromyalgia/

Ruhoy and Kaufman on IIH in ME/CFS and Complex Diseases

https://www.healthrising.org/blog/2024/02/03/idiopathic-intracranial-hypertension-chronic-fatigue-unraveled/

Your vascular system and COVID

https://www.heartandstroke.ca/articles/a-quick-guide-to-your-vascular-system

Why does High-Dose Thiamine Relieve Fatigue in Individuals with Diverse Con

https://medium.com/eds-perspectives/why-does-high-dose-thiamine-relieve-fatigue-in-individuals-with-diverse-neurological-conditions-40a3502f6439

How craniocervical instability and brainstem compression ... Jen Brea

https://jenbrea.medium.com/pathology-part-i-a-walk-around-my-brainstem-abc515fb0be6

This page will be updated as new information becomes available.

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